La Lumière de Sacha

Because light doesn't always come from the sun.

Welcome to Sacha’s world. Here, you will discover the story of an extraordinary little boy, his daily life, his challenges, but above all, his light. Through this association, we hope to provide him with the means to communicate, grow, thrive, and live life to the fullest despite the obstacles he faces. Thank you for taking the time to discover his story.

How to donate Découvrir Sacha

— Qui est Sacha

A sensitive, affectionate child, always looking for shared moments.

Sacha is 7 years old. He likes to laugh, tease his Tango cat, do nonsense, listen to Pavarotti and the choirs. He finds his happiness in the water, during his night walks in the small port to play petanque, ride a little bike and admire the boats.

Sacha lives with a rare genetic peculiarity (mutations on the ERCC2/XPD gene) that makes his body unable to tolerate ultraviolet rays. For each outing, he must be covered from head to toe.

En savoir plus sur Sacha

— Notre engagement

Accompany Sacha, step by step

Through the association, we offer him the best conditions to grow, progress and flourish safely.

Caring for kindness

Physiotherapy, occupational therapy, speech therapy and APA coaching to strengthen your body and confidence.

Adapted equipment

Walking mat, Blazepods, stair simulator, UV protection equipment.

Adapted activities

Playful stimulation in protected places, so that he discovers and flourishes in serenity.

Secure mobility

Adapted car already acquired. Objective: a van equipped for long journeys and holidays.

Every gesture counts for Sacha.

A one-time donation, regular support, or your expertise as a health professional: everything helps us move forward.

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